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Invidious > Channel > Alport Syndrome Foundation

Alport Syndrome Foundation	1350 subscribers    RSS
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YT 1 minute 46 seconds 85 views Shared 2 months ago Alport Syndrome Foundation ASF Alport Patient Registry Info Dr Bradley Warady YT 21 minutes 6 seconds 184 views Shared 3 months ago Alport Syndrome Foundation A Deeper Look Into Alport Syndrome Genetics - Natera Renasight COL4A3, COL4A4, COL4A5 Findings YT 2 minutes 33 seconds 89 views Shared 4 months ago Alport Syndrome Foundation ASF Annual Campaign 2024

YT 1 minute 14 seconds 74 views Shared 4 months ago Alport Syndrome Foundation 2023 Paul Silver Enrichment Awardee: Helen YT 3 minutes 22 seconds 475 views Shared 6 months ago Alport Syndrome Foundation Alport Syndrome Research Update -July 2024 YT 1 minute 24 seconds 83 views Shared 7 months ago Alport Syndrome Foundation 2023 Paul Silver Enrichment Awardee: Rachel

YT 1 minute 43 seconds 121 views Shared 10 months ago Alport Syndrome Foundation ASF Alport Patient Registry: Help Advance Alport Research! YT 21 minutes 25 seconds 198 views Shared 10 months ago Alport Syndrome Foundation Pediatric Treatment Questions: Q&A YT 49 minutes 17 seconds 280 views Shared 11 months ago Alport Syndrome Foundation Alport Connect 2023 Keynote Address: Hopeful Advances in Research

YT 2 minutes 17 seconds 247 views Shared 1 year ago Alport Syndrome Foundation Alport Connect 2023 Highlights Video YT 1 minute 23 seconds 149 views Shared 1 year ago Alport Syndrome Foundation 2022 Paul Silver Enrichment Awardee: Nolan Waide YT 3 minutes 49 seconds 159 views Shared 1 year ago Alport Syndrome Foundation ASF Alport Patient Registry Launch Video (August 24, 2023)

YT 1 minute 43 seconds 197 views Shared 1 year ago Alport Syndrome Foundation 2022 Paul Silver Enrichment Awardee: Alexander Jones YT 14 minutes 40 seconds 983 views Shared 1 year ago Alport Syndrome Foundation Living Kidney Donor Interview: Mack YT 15 minutes 1 second 254 views Shared 2 years ago Alport Syndrome Foundation Researcher Spotlight Dr Rachel Lennon

YT 14 minutes 14 seconds 201 views Shared 2 years ago Alport Syndrome Foundation The AFFINITY Study YT 3 minutes 17 seconds 680 views Shared 2 years ago Alport Syndrome Foundation What ASF Means to Me YT 27 minutes 27 seconds 879 views Shared 2 years ago Alport Syndrome Foundation R3R01-ASFSGS-201 Study Presentation and Q&A

YT 42 minutes 53 seconds 1K views Shared 2 years ago Alport Syndrome Foundation Alport Connect 2022: Nutrition and Kidney Disease YT 30 seconds 73 views Shared 2 years ago Alport Syndrome Foundation 2021 Paul Silver Enrichment Awardee: Tara Marashi YT 4 minutes 53 seconds 342 views Shared 2 years ago Alport Syndrome Foundation 2022 Hall of Hope

YT 12 minutes 46 seconds 318 views Shared 2 years ago Alport Syndrome Foundation ASF 2022 Research Update YT 4 minutes 17 seconds 69 views Shared 2 years ago Alport Syndrome Foundation Alport Connect 2022: Registrant Access Details YT 13 minutes 169 views Shared 2 years ago Alport Syndrome Foundation FREEDOM-1 and FREEDOM-2 Webinar

YT 16 minutes 33 seconds 221 views Shared 2 years ago Alport Syndrome Foundation Alport Syndrome Researcher Spotlight: Laura Perin, Ph.D. YT 31 minutes 56 seconds 1K views Shared 2 years ago Alport Syndrome Foundation Living Kidney Donor Story: Kevin Schnurr and Matt Threadgill (April 19, 2022) YT 19 minutes 42 seconds 217 views Shared 2 years ago Alport Syndrome Foundation Alport Syndrome Researcher Spotlight: Ron Korstanje, Ph.D.

YT 4 minutes 9 seconds 1K views Shared 2 years ago Alport Syndrome Foundation Brief Video Message re: U.S. FDA Decision on Bardoxolone Methyl YT 25 minutes 3 seconds 1K views Shared 2 years ago Alport Syndrome Foundation Pediatric Alport Patient Care: What You Need to Know Right Now YT 4 minutes 27 seconds 130 views Shared 3 years ago Alport Syndrome Foundation Emerging Leadership Council (ELC) 2021

YT 1 hour 13 minutes 48 seconds 248 views Shared 3 years ago Alport Syndrome Foundation Q&A: Women and Girls (Alport Connect 2021) YT 24 minutes 43 seconds 286 views Shared 3 years ago Alport Syndrome Foundation ASF 2021 Research Update YT 47 minutes 4 seconds 109 views Shared 3 years ago Alport Syndrome Foundation Your Role in the Alport Research Roadmap

YT 40 minutes 59 seconds 688 views Shared 3 years ago Alport Syndrome Foundation Q&A: Understanding Your Genetic Test Results YT 1 hour 2 minutes 4 seconds 5.4K views Shared 3 years ago Alport Syndrome Foundation Understanding Kidney Lab Results with Dr. Anjay Rastogi, M.D., Ph.D. YT 45 minutes 5 seconds 337 views Shared 3 years ago Alport Syndrome Foundation Q&A: Hearing Loss Technology, Coping, Tips and Tricks

YT 1 minute 18 seconds 88 views Shared 3 years ago Alport Syndrome Foundation 2020 Paul Silver Enrichment Awardee: Lindsay Poe YT 45 minutes 59 seconds 172 views Shared 3 years ago Alport Syndrome Foundation Q&A: Patients and Caregivers (Alport Connect 2021) YT 3 minutes 1 second 105 views Shared 3 years ago Alport Syndrome Foundation 2020 Paul Silver Enrichment Awardee: Niklas Murray

YT 40 minutes 41 seconds 1.1K views Shared 3 years ago Alport Syndrome Foundation Understanding Genetic Testing in Alport Syndrome YT 3 minutes 53 seconds 89 views Shared 3 years ago Alport Syndrome Foundation NKF Patient Network - Alport Syndrome Announcement YT 1 minute 34 seconds 38 views Shared 3 years ago Alport Syndrome Foundation Join Us - Pediatric Alport Patient Insight Campaign

YT 6 minutes 39 seconds 817 views Shared 3 years ago Alport Syndrome Foundation Alport Syndrome - What Does That Mean? YT 13 minutes 13 seconds 653 views Shared 3 years ago Alport Syndrome Foundation Alport Syndrome Sibling Stories 2020 YT 1 hour 4 seconds 288 views Shared 3 years ago Alport Syndrome Foundation ASF and IPNA Present: "Alport Syndrome: Patient - Physician Perspectives" (April 1, 2021)

YT 1 hour 49 seconds 851 views Shared 3 years ago Alport Syndrome Foundation Alport syndrome and the Eyes: What Patients Need to Know (March 24, 2021) YT 25 minutes 33 seconds 4.3K views Shared 3 years ago Alport Syndrome Foundation Alport Syndrome Female Diagnosis Stories YT 43 minutes 11 seconds 304 views Shared 3 years ago Alport Syndrome Foundation Understanding Dialysis and Transplant for Patients in Every Stage of Kidney Disease

YT 59 minutes 33 seconds 450 views Shared 3 years ago Alport Syndrome Foundation Navigating Alport Syndrome from the Cradle to College Q&A (February 24, 2021) YT 16 minutes 43 seconds 273 views Shared 3 years ago Alport Syndrome Foundation Self-Advocacy: A Patient Perspective YT 58 minutes 53 seconds 585 views Shared 4 years ago Alport Syndrome Foundation FREEDOM-1 Clinical Trial for Patients Preparing for Kidney Transplant (November 17, 2020)

YT 43 minutes 49 seconds 27K views Shared 4 years ago Alport Syndrome Foundation Renal Diet and Nutrition YT 45 minutes 6 seconds 129 views Shared 4 years ago Alport Syndrome Foundation Patient Panel YT 1 hour 5 minutes 52 seconds 6.9K views Shared 4 years ago Alport Syndrome Foundation Dr Simon's Alport Syndrome Overview 2020

YT 2 minutes 16 seconds 102 views Shared 4 years ago Alport Syndrome Foundation 2019 Paul Silver Enrichment Awardees: Luke and Liam YT 42 minutes 35 seconds 1.1K views Shared 4 years ago Alport Syndrome Foundation Alport Syndrome August 1, 2020 Research Update YT 44 minutes 46 seconds 1.4K views Shared 4 years ago Alport Syndrome Foundation Women and Girls with Alport syndrome

YT 39 minutes 35 seconds 266 views Shared 4 years ago Alport Syndrome Foundation Navigating Pediatric Alport syndrome: Insights from a Pediatric Nephrologist YT 1 minute 47 seconds 1.5K views Shared 5 years ago Alport Syndrome Foundation Alport Syndrome in Teens YT 3 minutes 39 seconds 270 views Shared 5 years ago Alport Syndrome Foundation Zac Reflects on his Living Donor Transplant