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Invidious > Channel > Bobby Jones Chiari & Syringomyelia Foundation

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YT 33 minutes 45 seconds 235 views Shared 1 month ago Bobby Jones Chiari & Syringomyelia Foundation Headache and Pain Treatment in Chiari - featuring Dr. Xiang Qian YT 57 minutes 47 seconds 97 views Shared 1 month ago Bobby Jones Chiari & Syringomyelia Foundation Addressing the Complexities of hEDS Care Using Community Engaged Research - Dr. Michelle Nichols YT 1 hour 34 seconds 137 views Shared 1 month ago Bobby Jones Chiari & Syringomyelia Foundation Multi-Modal Neuroimaging for Chiari 1 - Dr. Kristen Yeom

YT 1 hour 11 minutes 5 seconds 94 views Shared 2 months ago Bobby Jones Chiari & Syringomyelia Foundation Papilledema featuring Dr. Scott Haines YT 45 minutes 40 seconds 177 views Shared 2 months ago Bobby Jones Chiari & Syringomyelia Foundation Why Neuroplasticity for Ehlers Danlos Syndrome Works! - Susan Chalela, MPT YT 28 minutes 25 seconds 286 views Shared 2 months ago Bobby Jones Chiari & Syringomyelia Foundation I was diagnosed with Chiari, what should I know? - Dr. David Bauer

YT 1 hour 11 minutes 47 seconds 297 views Shared 3 months ago Bobby Jones Chiari & Syringomyelia Foundation EDS and its Endocrine Connections - Dr. Joseph Mathews YT 18 minutes 29 seconds 245 views Shared 3 months ago Bobby Jones Chiari & Syringomyelia Foundation What We Know About Chiari & Neuroimaging Research - Dr. Jarod Roland YT 25 minutes 6 seconds 185 views Shared 3 months ago Bobby Jones Chiari & Syringomyelia Foundation Redefining Chiari 1: Prevalence, Natural History, and Patient/Family Perspectives - Dr. Strahle

YT 53 minutes 30 seconds 657 views Shared 4 months ago Bobby Jones Chiari & Syringomyelia Foundation Dr. Eric Jackson - "Chiari I Malformation: We Have Guidelines... Now What?" YT 1 hour 11 minutes 36 seconds 451 views Shared 7 months ago Bobby Jones Chiari & Syringomyelia Foundation Research updates from the Norris Lab on hEDS diagnostics, advocacy, and "other stuff" YT 1 hour 13 minutes 26 seconds 547 views Shared 8 months ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert - CCI: Clinical Diagnosis, Radiological Metrics, Treatment, and Outcomes Analysis

YT 58 minutes 10 seconds 592 views Shared 10 months ago Bobby Jones Chiari & Syringomyelia Foundation Chiari I as an Incidental Finding - Ask the Expert featuring Dr. Mark Proctor YT 35 minutes 39 seconds 918 views Shared 10 months ago Bobby Jones Chiari & Syringomyelia Foundation What to Know About Chiari 1 Malformation: What is Chiari and Why Do I Have Symptoms? feat. Dr. Bauer YT 34 minutes 45 seconds 481 views Shared 10 months ago Bobby Jones Chiari & Syringomyelia Foundation Presentation and Outcomes in Chiari I: Patient-Centered Interpretation of Clinical Research

YT 1 hour 3 minutes 4 seconds 1.1K views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation You Don't Always Need Surgery for Chiari 1 - Ask the Expert feat. Dr. Shobhan Vachhrajani YT 23 minutes 46 seconds 857 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Hope on the Horizon: EDS Research Update - Roman Fenner YT 49 minutes 28 seconds 211 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation KarunaHOME: Retrain your Brain, Unlearn your Pain - A multidisciplinary chronic pain system

YT 42 minutes 8 seconds 532 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation CBT Tools for Coping with Chronic Illness - Victoria Felix, PhD YT 45 seconds 101 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation BJCSF Testimonial - Courtney Rousse Sparks, DVM/PhD Candidate YT 43 minutes 15 seconds 1.2K views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ehlers-Danlos Syndrome: A Difficult Diagnostic Journey - Dr. Steven Shapiro

YT 44 minutes 32 seconds 242 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert: What's New in Tech - featuring Mark Geiger on the "ReFlow Mini Flusher" YT 56 minutes 55 seconds 199 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation What's New in Tech: Dr. Ryan Myers on CranioSense - Intracranial Hypertension Diagnosis & Monitoring YT 1 hour 8 minutes 19 seconds 2.2K views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Chiari Over the Ages - Ask the Expert feat. Dr. Gerry Grant

YT 47 minutes 49 seconds 266 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Relationships in Crisis: An Interactive Session with Patients and Caregivers YT 2 minutes 20 seconds 439 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Dr. Mark Luciano, Chiari Research YT 1 hour 17 minutes 22 seconds 2.2K views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation I've Been Diagnosed with Chiari, Now What?: A Patient's Perspective

YT 3 minutes 40 seconds 173 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Chiari Questions with Winston YT 1 hour 1 minute 49 seconds 382 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert Open Q&A featuring Dr. Kristopher Kahle on Chiari, Hydrocephalus, Stroke, & More! YT 55 minutes 7 seconds 269 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert feat. Dr. David Harter on Making the Most of your Visit

YT 1 hour 2 minutes 27 seconds 72 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation A Guide to Donor Advised Funds - Ask the Expert feat. Wayne Wildrick, Financial Advisor YT 1 hour 2 minutes 27 seconds 470 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert featuring Dr. Edward Ahn - Pediatric Chiari Treatment YT 1 hour 10 minutes 26 seconds 535 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert feat. Dr. Steffi Dreha-Kulaczewski on Breath to Drive Your CSF Flow

YT 52 minutes 47 seconds 311 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Dr. Brandon Rocque on the 2022 Pediatric Section Neurosurgery Meeting YT 1 hour 8 minutes 38 seconds 418 views Shared 1 year ago Bobby Jones Chiari & Syringomyelia Foundation BJCSF Lecture from Dr. Daniel Scott - Ankle Instability in the EDS Population YT 49 minutes 58 seconds 704 views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert featuring Dr. Rabia Qaiser - How Does Your Neurosurgeon Decide What To Do?

YT 1 hour 1 minute 19 seconds 169 views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert featuring Tish Hevel - Brain Donor Project YT 21 minutes 22 seconds 1.1K views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation Importance of Resistance to CSF & Brain Tissue Motion in Chiari Symptomatology - Francis Loth, PhD YT 49 minutes 14 seconds 2.8K views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation How to exercise while staying safe and knowing your boundaries - EDS, Chiari and related disorders

YT 15 minutes 35 seconds 1K views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation Hope on the Horizon: Highlighting new scientific discoveries and the future for patients like us YT 1 hour 1 minute 15 seconds 1.4K views Shared 2 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert: Dr. Marcus Stoodley - What is the surgeon trying to achieve? YT 1 hour 38 minutes 54 seconds 4K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert - Dr. James A. Stadler on Syringomyelia: Learning What We Don't Know

YT 1 hour 42 minutes 29 seconds 2.4K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert - Genetics: hEDS and Co-morbidities - Dr. Chip Norris & Cortney Gensemer YT 53 minutes 17 seconds 22K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Inflammatory Biomarkers in POTS Patients - Dr. Blair Grubb YT 1 hour 23 minutes 7 seconds 1.7K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert: Dr. Eric Jackson - Chiari in 2021: Where are we now and how do we move forward?

YT 1 hour 43 minutes 6 seconds 1.7K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert featuring Ilene Ruhoy, MD, The Pentad Patient YT 49 minutes 12 seconds 471 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation James Freddie Hill III, OD, FAAO mp4 YT 1 hour 20 minutes 48 seconds 1.4K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert: Dr James Stephen on The Initial Appointment - Additional Conditions to Evaluate

YT 45 minutes 38 seconds 898 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Demandez a L'Expert - Cyrille CAPEL, Neurochirurgien: Les Malformations de Chiari de Type 1 YT 34 minutes 28 seconds 5K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Craniocervical Instability in Hypermobile EDS - Jane R. Schubart, PhD & Fraser C. Henderson, Sr., MD YT 34 minutes 10 seconds 544 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation CSF Dynamics Coupled to Global Circulation in Holistic Mathematical Models - Eleuterio Toro, PhD

YT 40 minutes 17 seconds 325 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Rare & de novo Coding Variants in Chromodomain Genes in Chiari I Malformation - Gabriel Haller, PhD YT 30 minutes 57 seconds 367 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Management of Chiari in Pregnancy - Marcus Stoodley, MD YT 26 minutes 56 seconds 622 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Subtraction Osteotomy for Recurrent Tethered Cord Syndrome - Nicholas Theodore, MD

YT 3 minutes 46 seconds 97 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation 2021 Think Tank Opening Remarks - Cormac O. Maher, MD YT 1 hour 35 minutes 32 seconds 273 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Jen Morgan, Esq. & Michael Liner, Esq.: Social Security - The Down and the Dirty YT 1 hour 46 minutes 48 seconds 665 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Dr. Aruna Rao on Sleep Disorders & Chiari

YT 1 hour 12 minutes 27 seconds 235 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Dr. Catherine Loughin - Chiari, EDS & Tethered Cord in Animals YT 1 hour 19 minutes 34 seconds 362 views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Dr. David Bauer - Guidelines for Treatment of Chiari: Working Group Update YT 1 hour 23 minutes 7 seconds 1.4K views Shared 3 years ago Bobby Jones Chiari & Syringomyelia Foundation Ask the Expert with Dr. Eric Jackson on Chiari: Where Are We Now & How Do We Move Forward